Darlaine Honey
Patient Advocate, UK
Biography
Darlaine Honey is a 57 year old Sexual Health Advisor for the NHS. Studied Psychology 2009 - 2012 at London Southbank University. Diagnosed with Invasive lobular carcinoma 2016 she fought for a double mastectomy after 4 margins, and a salpingo oopherectomy which showed a STIL lesion of the fallopian tube. She is ER/PR positive, HER negative, BRACA negative. Troubled by the lack of follow up diagnostics for this unique subtype, it is her passion to raise awareness of the need for more sophisticated follow up due to the nature and metastatic pattern of invasive lobular breast cancer. Feisty and dedicated to improving diagnosis, care and ongoing research into Invasive Lobular breast cancer and quality of life for women experiencing the many side effects of post operative medications such as AI's and Tamoxifen which for many is the cause of discontinuing medication. Often, certain brands of medication are refused at GP level due to cost, but these are often the meds with the least side effects. Treatment length is a factor in decision making as women battle some quite severe side effects. There is also the failure of some of these treatments to consider. Darlaine Honey is an advocate raising awareness and improving the lives of women after breast cancer with a special interest in sex after breast cancer.
Abstract
Abstract : What about Invasive Lobular Breast Cancer?